Friday, July 17, 2009

Swine Flu Come Pnuemonia

Well somewhere around Friday or Saturday of two weeks ago I caught the dreaded Swine Flu. Monday I was feeling pretty drained but otherwise ok. Tuesday my throat started to get sore and by Wednesday I new I was getting the flu. 

I woke up on Thursday feeling as though I'd been hit by a truck. Headache, muscle soreness, sore throat, coughing, blocked nose and a fever. I called in sick, took two Mersyndol and went back to sleep. I felt pretty miserable on Friday too. 

Feeling guilty about the amount of time I have off work, on Monday I got up, took some panadol, cough syrup, and went in to work regardless. It turned out to be the worst thing I could've done. The next day I felt worse than ever and again called in sick. 

I called the hospital to inform them that I was sick and they promptly cancelled my Remicade infusion. I was told to call back once I was feeling better. 

I went to the doctor on Wednesday who informed me that my Swine flu was now pneumonia and that I was not to go to work, or indeed get out of bed for the rest of the week. 


So here i am, still feeling awful, I've been off work for a week and a half now with little sign of improvement. I'm worried about delaying my remicade, since every-time I have even the shortest break from medication my Crohn's goes into hyper-drive and I wind up needing to be admitted into hospital. 

Hopefully I'll start feeling better in the next few days. I need chocolate cake. Stat!



Friday, July 3, 2009

Fatigue, weight gain, oh joy!

It’s been ages since I’ve written anything and I feel bad about that. I keep meaning to put hand to keyboard but I wind up getting distracted or just run out of time. As it is, I’m writing this when I should be working. Shhh. Don’t tell my boss.

Currently I’m on Methotrexate injections weekly and Remicade infusions every 8 weeks. Most of my symptoms have settled down and things are almost tolerable.

But I am so tired. Really tired. Sleep 16 hours a day tired. I go to bed at 9pm and I get up at 7am and I feel like I haven’t even slept. I walk around with bloodshot eyes and people look at me constantly and ask if I’m ok. Man, it’s always something with me.

Anybody else had this with either Remicade or Methotrexate?

I’m getting regular B12 and Iron shots so I know it’s not that, and thanks to a concerted effort on my part to eat properly most of my other vitamin and mineral levels are ok.

The other thing that happening at the moment is weight gain. Good Lord, I’m averaging 1 kilo a week and if one more person says to me “You needed to put on some weight though” I’m going to put my boxing classes to use and pummel them senseless. Even my GP said it. What nobody seams to under stand is the weight gain from meds isn’t going to stop, when should I do something about it? After I’ve gained 5kgs? 10kgs? 50kg? Or should I get on to it now? I’ve gained about 8kilos since leaving hospital in February, although most of that has happened in the last 2 months. So I have changed my eating habits and get more exercise. I want to avoid getting fat or that will make me depressed and then we’ll have a whole nother set of problems.

Anybody remember what life was like before we got this disease?