Wednesday, May 19, 2010


Today is World IBD Day. A day dedicated towards raising much needed awareness of Crohn's disease and ulcerative colitis (collectively known as Inflammatory Bowel Disease-IBD).

Support the cause by clicking here, which will take you to the Crohn's and Colitis Australia website.

To everyone out there who has IBD, or supports somebody who does, Happy IBD Day.

Keep on, keeping on.


Thursday, May 6, 2010

Still Waiting.

I still haven't had my infusions. 8 days late and no sign that it's going to happen any time soon. There are no words to describe how angry I feel right now.

After my surgery this exact situation (born out of pure incompetence) lead to me being without medication for 6 weeks. 6 weeks was all it took for me to become very very unwell.

I'm angry and I'm panicking. What if all the good work that's been done is again undone by this break? Last time 6 weeks after surgery I was again back at square one. It took another 12 months of unbelievable pain and illness before any one would listen to me. When I finally did end up back in hospital. There were threats of an ostomy bag. In the end I had multiple surgeries instead.

Fuck. Fuck. Fuck.