Wednesday, April 28, 2010

Why are we waiting...

So I arrived for my Infliximab at 9am this morning and as I was heading towards the elevator, my mobile rings. It's the co-ordinator (and I use that term loosely) of the transfusion floor telling me they've lost my prescription and so don't come in." Um... too late my friend, I'm already here.

I'm now sitting in the cafe where there's internet access, very patiently waiting for them to sort out getting hold of my prescription so I can get my Infliximab. He said it could take up to an hour. I scoffed, pffft, yeah right! You usually have me waiting at least that long when you have the stuff. He flinched at that and I suddenly felt bad. Sometimes I snap first and think later.

Anyway. It's been an hour. I'm still waiting. So much for having an early transfusion and having the rest of the day to myself. I have a feeling I'm going to be here all day.

Stay tuned!


Update ***

At about 11am I got a phone call from my specialist who apologetically informed me that the research nurse (I'm sure I've blogged about her before, she's the worlds most incompetent person, she constantly messed up my Humira prescriptions when I was on that and single handedly caused me to be SIX weeks without medication) up and left on Friday, giving 3 days notice, and leaving everything up in the air. They can't find my paper work, symptom diary, blood results and so medicare will not release the medication. He asked me where I was and upon discovering that I was just downstairs he came down to see me. He has to have seen me within 10 days of writing the prescription it seems. Freebie!

Long story short, I can't have the Infliximab today. We completed all the necessary paperwork again and he assures me it'll be fine to go in a couple of days. Unfortunately, my only availability is on a Wednesday and next week I have the dentist scheduled, there is no way I'm going to delay getting it for two weeks. I guess I'll just have to wait and see what happens.

It's so unbelievably bloody frustrating.

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